DTC genetic testing: pendulum swings and policy paradoxes.
نویسنده
چکیده
After decades of optimistic portrayals, there has been a shift in the way that the popular press represents genomic research. A skeptical view has become more common. The central reason for this pendulum swing away from popular support is the harsh truth that most genetic risk information just isn't that predictive. This reality has created a fascinating policy paradox. If, as many in the scientific community are now saying, genetic information is not the oracle of our future health as we were once led to believe, and if access does not, for most, cause harm, why regulate the area? Why worry about shoddy direct-to-consumer (DTC) genetic testing companies? One primary justification, and one endorsed by the recent Canadian College of Medical Geneticists (CCMG) Policy Statement on DTC Genetics Testing, is that information that is conveyed to the public about genetics via marketing and to those who access DTC tests should, at a minimum, be accurate.
منابع مشابه
ASHG Statement* on direct-to-consumer genetic testing in the United States.
* Approved by the ASHG Board of Directors in January 2007. Direct-to-consumer (DTC) genetic testing has been gaining prominence over the past several years. Proponents of DTC testing cite benefits that include increased consumer access to testing, greater consumer autonomy and empowerment, and enhanced privacy of the information obtained. Critics of DTC genetic testing have pointed to the risks...
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While I am in agreement with Tarini, Tercyak, and Wilfond (2011) about the need for more research on children and genetic testing, I strongly object to their main point, which is that this research should include studies of children’s involvement in direct-to-consumer genomic testing (DTC GT). I believe that this recommendation is premature. Having children undergo DTC GT now would expose them ...
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عنوان ژورنال:
- Clinical genetics
دوره 81 1 شماره
صفحات -
تاریخ انتشار 2012